More real time notes...
Now the Health 2.0 Spring Fling kicks off proper.
Matthew and Indu set the scene.
User generated Health care -> Consumers connect to providers -> partnerships to reform delivery -> Data Drives Decisions & Discovery
A lot of activity around partnerships to reform delivery stimulated by health care reform.
Three New Themes:
1. Wellness 2.0 Prevention Exercise and Food
2. Making Health Care Cheaper
3. The Evolution of Research
Let's change what we define as evidence and research.
So we need to: Get consumers engaged in health, wellness and nutrition. Get access to affordable health care and be able to measure what works.
Now we start the Fireside chats to give us some context.
Food/Prevention:
Wrote "Feeding Baby Green"
Addressing Obesity starting with babies. 30% of Americans are obese before 9 months old. What we feed babies is processed white flour. We are wiring them from their first solid food. This is the WhiteOut movement. Their first food should be whole grain. White Flour is the dominant food source in infancy.
Spread the word. Social Networks, Facebook and word of Mouth. We need to get the "voice of authority" to change. Grandparents are a group to reach out to and influence.
Half the babies in this country are fed through the WIC Program (Women in Crisis)
Obesity also has implications for other major conditions (Asthma etc.)
Dr. Alan Greene Interviews Abbe Don, IDEO
Abbe had a "Hockey Stick moment" when Blood Pressure , Cholesterol etc. Spiked. A complete change of lifestyle was required.
Went to a Medical Spa in Florida. Integrated medical team, Nutritionist, Physiotherapist.
How did the experience change design approach. How did design approach influence your view of the program.
Believe-Know-Act.
Only eat when you are hungry. "don't eat in case you are hungry later. You will always be hungry later"
How do we scale the Pridiken type program to treat 100M people?
There are a lot of Web 2.0 tools that can help. Social and Competition
Abbe Don talks with Stephen Downs - Robert Wood Johnson Foundation
Project Health Design - We are placing more responsibility on people's shoulders but haven't given the tools to cope.
The issue wasn't about seeing your data - but rather about acting on it.
Project Health Design is now focusing on Observations of Daily Living. The info we needed didn't come from the health record. Different data was needed. What have you been eating, what is your mood etc.
Next step was how to engage clinicians with this information.
How does this relate to Quantified Self?
A real kinship between two movements. A clinician has very little data about your life. Quantified self starts from a perspective of self knowledge.
The power of the relationship is changing. Data is a way to ground the conversations between doctor and notes.
Open Notes is a part of that.
Q:What is the big vision for the PHR.
A: It will be different for everyone.
[Ed: I say we need a life record and not a Personal Health Record. We don't know what should end up in our PHR.]
It is hard to sell the notion of logging on to my PHR. We will move to a point where there is a stream of data about us and tools to help work with that stream.
Stephen Downs interviews Nikoli Kirienko Crohn's Patient - Crohnology MD
Focus is on giving patients the tools to know when to ask for help.
To deal with the experience he kept a daily log in Microsoft Word. But it was "write once and read never".
The self awareness helped him cope. In one instance helped him avoid Deep Vein Thrombosis.
Project will give 40 patients iPad to track their condition. Capture weight, activity, pain, stress, fatigue, medications and diet.
Building on iMedicate platform.
This will be a patient narrative. Take the narrative in to an office visit.
"We need to more of a collaborative health record" You need to see the whole picture.
Childbirth and Maternity Care
Overwhelmed with choice but not necessarily data and information.
Amy Romano interviews JD Kleinke
JD Kleinke - "Catching Babies"
Amy Romano - Childbirth Connection"
Everything that was wrong with healthcare was an order of magnitude more wrong around maternity care.
C-Section rates vary across the country and with states. The variation was obstetrics paractice.
Information fluidity is crucial to improving the situation.
Indu Subaiya interviews Amy Romano and vice versa.
Hospitals think value and use of procedures. It drives their income. That means do more interventions.
When you move outside that system there is a different process to patient centered birth experience.
The birth experience is positioned as a choice between safety and the experience. It doesn't have to be that way.
We spend more in US on childbirth, C-Sections at 30% yet infant mortality is higher.
Medicaid pays for 42% of births in USA.
Childbirthconnection.org is pulling together quality data around child birth. We need to drive down to a deeper level of granularity.
More Health 2.0 Spring Fling posts to follow tomorrow.
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